Unrest (I) (2017) User Reviews

Shows the reality of living with severe M.E.

[fabfisher · 7/10 · 19 April 2018]

As someone who has suffered from severe M.E. for over 34 years I think this film does a good job of showing what it's like to live with this awful disease for years on end and for that I congratulate Jennifer. However I have got a few criticisms about the film.

I thought it was a mistake to include the bit about mold toxicity or at least the lengths she went to avoid it. Some people will no doubt be thinking "Look she wouldn't let her husband touch the outside of the tent unless he changed his clothes and had a shower. She's crazy" It really didn't look good and gives ammunition to the doubters and deniers to throw at at us.

Also there was no explanation that CFS and M.E. are not the same condition. CFS is a condition that can be caused by many things including depression where as M.E. is a neuro-immune disease that effects every part and every system of the body.

And lastly I think she filmed herself laying on the floor one to many times. She was was shown laying in the middle of the floor of her house with no indication of why she was on the floor and probably looked to some people like she was just acting for the camera.

Anyway over all it's a good film about living with severe M.E. and hopefully it will go some way in convincing people and medics that it is a physical disease and not just deconditioning with psychological factors.

An important, yet difficult to watch film

[maccas-56367 · 8/10 · 20 January 2019]

Part of me had been putting off watching this. I'm glad I finally took the plunge though, because it's a well made film that has perhaps been the most important thing to happen to the CFS/ME community.

It was tough to watch. As a sufferer myself, just watching this film brought up a whole range of potential issues: would it make me emotional? Would that cause me to burn-out or have a flare up? Would it make me depressed? Would I be embarrassed watching it with someone else?

One thing it certainly achieved, was putting my own illness in perspective. It made me grateful for the things I "do" have, despite having CFS/ME. It made me grateful that I'm not bedridden. It broke my heart to see those who are and the intimate realities of their lives. I also found it inspiring to see those sufferers still maintaining some resemblance of a life.

The "millions missing" movement to raise awareness was perhaps the most emotionally difficult part of the film for me. Because I could relate. That "missing" out on life aspect of the illness really struck home. At times, I found the film had an overwhelming depressing tone, which was difficult to digest and a reason I often don't involve myself with support groups.

Overall, this is a well-made documentary that should be seen by everyone in the medical world. I hope it helps sufferers and their families too. I think it helped me, and for that I'm grateful.

Fails to tell the story of most sufferers who are extremely disadvantaged, but dares to expose brilliantly soulless criminals, such as Per Fink and his crew.

[krissiees · 9/10 · 18 January 2018]

It only shows one side of the coin, those who have family support and a certain or quite high financial level. I am also part of the Millions Missing, due to high grade Multiple Chemical Sensitivity since early 2017, though I suffered silently from lighter ME for years by making lots of life adjustments and hiding it. I am missing since last year, like many others due to being stuck in a place without assistance, support and lack of resources and enough money. Even though, I can only be grateful to Jen and the team who helped the documentary become true. None of us - the disadvantaged ones - have anyone to help us hold a camera, not even help us travel to a doctor or buy our food or take a shower. I am as well thankful to the doctors to dared to speak in the name of patients. But the most important part of the film and why it must absolutely make it to the red carpet, is exposing, in the name of Karina, Sophia Mirza and all of us, the ugly, shambolic affair of Per Fink and his medical mafia henchmen worldwide. Buddies, please #votetoexposemedicalcrime

Blow you out of the water good

[exceedhergrasp · 10/10 · 31 January 2017]

One of the most compelling documentaries I've ever seen. From moment one ("Princeton Veterinary Hospital") Jen and Omar reel you into the mad, new life Jen's illness has shaped for them. The movie goes beyond educating people about a poorly-understood illness. Instead, it vividly recreates the reality of Jen and the other patients, and it does so with such humor, humanity, and loving-kindness that you feel as though you know all of these people and are deeply invested in their small triumphs. An absolute must for any documentary devotee, and anyone who struggles with chronic illness or is struggling to understand the world of someone who does.

I know this is full of superlatives, but I can't help it. Ugly crying was involved when I saw this story, but it somehow manages to be uplifting instead of despairing. I can't recommend it highly enough.

Believe her

[paperandbooks-06798 · 10/10 · 9 December 2017]

The theme of this film could not be more timely -- an accomplished, strong young woman falls ill with a mystifying malady and suddenly discovers that doctors dismiss her symptoms, misdiagnose the disease, or tell her it's all in her head. Once she deteriorates to the point of being bedridden, she realizes that she has been all but disappeared. Only through social media -- one of the few ways that allow her to remain connected to the world -- does she realize that millions around the world have been rendered similarly invisible.

Directed mostly from her bed and including footage of herself shot on an iPhone, this documentary weaves together director Jen Brea's personal story -- centered mostly around how she and her husband, Omar Wasow deal with the way her disease upends their lives -- with those of other patients. Much in the film is shocking and indeed hard to believe. It's hard to believe that some ME/CFS patients (myalgic encephalomyelitis/chronic fatigue syndrome) suffer from a form of the disease so severe that they must live in darkened rooms, unable to bear light, sound, or touch -- and that some must be fed intravenously. It's hard to believe that patients can be taken from their homes and forcibly institutionalized because health policy in some countries continues to be based on the outdated notion that the illness is psychosomatic. It's hard to believe that an illness so common (an estimated 17-30 million around the world) could be so under researched or so devastating.

I could not be more pleased to learn that Unrest has made the short list for the Oscars best documentary category. It's an underdog -- the film got its start through a Kickstarter campaign and has gone from a Sundance audience award, to place on PBS's Independent Lens lineup, to the notice of the Academy. Furthermore, it's directed by a woman of color who is disabled and is speaking on behalf of an extraordinarily disenfranchised group of people similarly disabled by the disease. It's easier to let people disappear, easier to imagine that it will never be you. But it's also #timeforunrest.

Sad but you don't regret watching it. Fascinating.

[katherinemch · 10/10 · 4 October 2017]

There were so many times during this film that I cried. It's not just about Brea and her husband; there are several other ME/CFS patients you get familiar with, all unique and relateable people. You get to see the variety of ME life. Not just who they are now but who they used to be when they were free to design their life as they wanted.

It's never directly stated but the contrast of old home movies of the patients and voiceovers about scepticism... clearly these people were happy & driven before they got sick. They don't look like people who were headed to a nervous breakdown or other hypochondria. They seem to be energetic, driven, happy people. The idea that ME is a psychosomatic issue is shown to be nonsense.

As a spoonie I laughed to recognize a dozen or so "miracle cures" Brea tries that I've tried too. Awkward moments she had that I've had too (and felt like I was the only weirdo on earth to go through it). For anyone with chronic illness it's a validating movie, seeing that we're not alone.

I think this movie would be a great way for someone who is acquainted with a spoonie but not close enough to them to see their 24/7 life. Cousins, coworkers, classmates... this could help them understand. I think it would be a great addition to any class on disability discrimination, like to teach medical professionals or social workers to put themselves in the shoes of a sick person.

Brea and her guy are a very sweet couple, heartwarmingly devoted. And they're very educated & charming & good looking. It's easy to watch them discuss their life. The message of the film may be a downer but these folks and their friends are so lovable it's actually mostly pleasant to spend the time "with" them. Please don't avoid this movie because you think it will be depressing. It's a fascinating and exciting show, packed with information and very intimate moments. What I was left with was respect for the disabled, desire to see justice for those abandoned by the healthcare system (the research budget for ME is ridiculously small compared to other less life-ruining illnesses!!)... I feel stronger and more motivated to be a good citizen, after watching this. Not depressed, inspired.

The Most Common Illness You've Never Heard Of

[aaronbenjamincaine · 10/10 · 1 January 2018]

My brain doesn't work as well as it once did, so I hope you'll forgive me for being blunt. This film has been a remarkable gift for the millions of people suffering from the debilitating and almost entirely ignored disease ME/CFS. It humanizes our suffering in a way that has somehow never been done in film before. And it lays out in very simple terms the decades (or even centuries) of prejudice and ignorance that has marooned us here.

At the heart of the film are the true stories of a handful of people with severe ME/CFS, people trapped in their beds for days or for years, some unable to bear even minimal human contact.

I know this hasn't been the most coherent review...so often people with ME/CFS don't say anything because we can't say it well. Watch the movie, you'll get it.

Compelling human drama - love story, medical documentary, work of advocacy

[brianvastag · 10/10 · 11 October 2017]

Jen Brea started making this film while she was bedbound with a terrible - and terribly misunderstood - illness. It took her three years or more, but the finished product is very polished and emotionally devastating - while also offering notes of hope and uplift. The film follows Brea and other patients as they struggle to find sympathetic doctors and caring family members. Jen's story is the main throughline - she hits a low point after doctors tell her she has 'conversion disorder,' and then she begins to find meaning by connecting with other patients online. We see her formulate the idea for a film as she begins talking with other patients. It is a heavy film about a neglected illness - but there are moments of levity and joy sprinkled throughout. At the screening I went to, the audience laughed at appropriate spots. And at the end, a women in the audience stood up and said she finally understood what had been wrong with her for so many years. Getting this film out to medical professionals will help fill the gaps left by medical schools, which do not teach very much, if anything, about the illness known as myalgic encephalomyelitis. The CDC renamed in chronic fatigue syndrome in the 1980's, but as you'll see in the film, that name has done a lot of damage in terms of misperceptions and stigma.

Watch it!

[jane-36279 · 14 January 2018]

Brilliant film. Compelling, informative, inspiring. Not to be missed.

This is Nonsense.

[griggsc76 · 1/10 · 4 February 2022]

I believe CFS exists and I believe some people have it. However, Jennifer Brea is not one of them. From the fake crying to the miraculous "cure" in the desert (why wouldn't you just move to a hotter/drier climate, if it "cured" your debilitating condition?) - this whole film is sus. And kind of a slap in the face to people who truly live with chronic, invisible illnesses.

And now (2020) Brea claims she is completely in "remission." What a shock!

Hopefully, someday, someone with true CFS makes a film and depicts it honestly...because this isn't it.

No Longer Silent and Hidden

[marci_sanchez · 10/10 · 11 October 2017]

No longer silent and hidden, "Unrest" effectively, artistically, and beautifully brings the topic of ME/CFS out into the open for all to see.

First-time director and patient Jen Brea presents the illness in a multi-dimensional manner, demonstrating the full reality of this complex disease. The severity and seriousness of the illness is conveyed, along with moments of grace, humor, resilience, and cinematographic artistry. In addition, the trajectory of ME/CFS is historically explained and includes interviews with prominent researchers in the field in order to provide the audience with the scientific underpinnings of the illness.

I recommend this film not only for patients with ME/CFS but for anyone who loves the cinema. "Unrest" stands alone on its own merits as an interesting, well-made documentary. It is also enlightening for those who suffer from related illnesses, as the experiences portrayed in the film can be quite similar.

A Snapshot

[trishhughes · 10/10 · 7 April 2017]

I am one of the millions missing, but one who is not bedridden, and I can still work, though at a much diminished capacity. Jennifer's attempt to describe her life and her illness is much needed. I was in tears as she described the difficulty of getting a diagnosis. When I got sick 25 years ago, it took me 6 years to be diagnosed. I was hoping that diagnosis was a little further along than it apparently is in the medical community. That was a major disappointment for me. I wish she had talked more about the cognitive issues. Yes, ME is physical, but the brain fog, the inability to concentrate or stay on task, the disorganization that came with the condition, the struggle to perform cognitive tasks that were once easy (reading maps, remembering how to get somewhere you should be able to, forgetting appointments, short-term memory problems, etc. etc), all add another layer to an otherwise debilitating condition. My accolades for Jennifer for the supernatural strength and commitment it required to put together a great snapshot of our shared nightmares.

Spellbinding Masterpiece

[sm_heller · 10/10 · 11 October 2017]

Unrest is a spellbinding masterpiece of storytelling, art, and social injustice commentary. Filmmaker Jennifer Brea brilliantly combines hypnotizing visuals, captivating music, and interweaving plot threads to engross the audience and masterfully accomplish what every good artwork should: profound and lasting emotion that spurs its audience to think, feel, and act in new ways. Indeed, and amazingly in a single film, Unrest evokes profound sadness, crushing frustration, mad fury, and finally hopeful epiphany that through this film and its social justice campaign, moviegoers can change the world — not just for the benefit of ME patients, but also for the benefit of the world.

One Of The Severely Ill Films Herself At Her Worst To Document The Disease Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

[teeheewee · 10/10 · 5 October 2017]

Jen Brea is one of the severely ill due to ME/CFS. She films herself, directs, interviews doctors and patients via Skype, and edits mostly from her bed in order to document the severity of her disease (and millions worldwide) and how she and her husband, her caretaker, now have to forge a different life than the one they had imagined for themselves.

Patients experience neurological issues with sound and light sensitivity and coordination, pain, POTS, cognition issues, and debilitating fatigue. Exertion whether physical or mental will bring on crashes where symptoms worsen. Doctors and researchers discuss the disease.

Oof

[maggie-58281 · 10/10 · 11 October 2017]

This is one of those documentaries everyone will be asking if you've seen. Sad, but so compelling and endearing. I can't believe she got the footage of so much of this. Excellent points particularly about how feminist issues come into play in health care and how far we are from having significant patients rights in situations where doctors don't know what's going on. Excellent doc.

Brilliant!

[Pilgrim51 · 17 January 2018]

As one who has been disabled with ME/CFS for over 30 years, I thought Jen Brea's serendipitous filming with her iPhone of her early experiences with ME/CFS was absolutely brilliant. She has offered the public a glimpse into a world that so many of us have lived in for years.

The information in this film was solid and very well balanced. A wonderful film all around!

All about Brea

[perrywynkles · 1/10 · 18 March 2021]

It's not about the illness it's all about her. She made sure there is a camera when she collapsed in the wheelchair. There are a lot of peope who have this illness who are to a certain extent attention seeking. This film is not true of the ordinary person who cannot work.

Anyone who films themselves with aphone as Brea did is not going to be objective.She knows its for a film and the more dramatic the more chance of an Oscar. Documentary makers should not be seen and just about heard in narration. Better still get a narrator. Otherwise not objective

These films are an insult to the ordinary sick. You think any ordinary person can just see any doctor they wish and have someone to look after them. Not everyone has that support

Oh and she made sure to put on her make up for the EEG.That is a very sick person who worries about make up

And who cares about her love story anyway? People watch these films to learn about the illnees. The doctors featured in these 'set up' films are mostly only available to the rich.

It is just an attempt by Brea to make money and have a chance to win a prize in the film world. She sought crowdfunding but seemingly is unaware or unacare many are too ill to work and do not have access to the medical care she has. She is just using the ME community to cash in on the illness. I would not support her

This illness needs to be tackled by a brave filmmaker who is not afraid to ask hard questions of doctors.

An Eye Opener!!

[doula_b · 10/10 · 15 December 2017]

As it is described in the title, an eye opener documentary that defines ME\CFS daily struggle, I salute Jeanne and Omar for their hard work, strengh and courage to give us a glimpse of their life and raise awareness to people to see how they live and cope on daily basis!! I salute Omar for his devotion, care, and heart warming love to Jeanne! there is times I couldn't help it not to cry, so touching and emotional, a piece of art! I have a sister and a good friend who has ME\CFS, and after watcing this I just wanna be there for her, supporting her as much as I can.

I send my regards to every single hero and heroine that participated in this work, we feel you and we know you're here with us, we see you and we hope that one day they'll find the right cure and the right solution.

ALL OF YOU ARE AN INSPIRATION!!

*HUGS*

Showing me our journey from the outside in. Stunning

[tina-85103 · 10/10 · 3 January 2018]

For me this film was hard to watch as it showed my experience through the eyes of others. This made it personal and hard hitting. I have now watched it several times, and it has not lost any of its impact. Like all good documentaries, UNREST needs to be watched many times to gain the most out of the information and insights it gives.

The full force for those that do not know or understand Post Extensional Malaise (PEM) may get a little lost due to the gentle guidance given. The consequences of keep in a PEM state may be lost in the beauty of the film, and the enduring love between the couple, so watch it more than once, and ask yourself if no understanding of the condition that gives so many dramatic impacts on the body, how would you cope. Would your relationships survive? If doctors are not given the full facts how can they help?

The clear effect of PEM on cognition through Jen's journey is a true portrait of how it is. The first time my son's world went black; as he was pushed to do more than his body could manage astounds me still. How flippantly he was dismissed by hospitals and our GPs and I was left to handle his condition by myself and blamed for his dramatic turn for the worse. I still have nowhere to turn and on a day to day basis handle the stress of this chronic illness on my own with no medical support.

Like Omar explains in the film you say too much they; in my case blame you as a parent. Karina Hansen, forced from her home and put in a mental hospital when she clearly has a physical illness is a truth that is denied by the UK, but it goes on. The court hearing made me feel the full force of the shock of how we as parents are treated. Her Father and Mother brought back those horrendous months when I was put under immense threat and pressure simply because my child did not recover in the six months stated by Professor Crawley research, which they quoted at me as provable science and dismissed all other research. To them it showed how my concern impacted on his health. They missed the fact he had coeliac, problems with blood volume and orthostatic intolerance. They assured me he would have recovered with the treatment regime she uses in six months so therefore I was the problem. In the UK they can and do take your child away. Yet if you say too little how can they be expected to help and if you must stay silent about the symptoms, how harmful is this for a very young child. This film shows how much is hidden and denied, even if the science treatment is based on is flawed and wrong, evidence from other research the impact on the body is dismissed, how much harm is and still is being done on one group of patients.

Due Candour is lost, governing bodies are deaf dumb and blind to facts with consent for treatment not fully explained and a clear denial of all rights taken away from parents who have severely affected children with ME a neuroimmune disease, in the UK in 2018.

Excellent

[pattyl317 · 10/10 · 9 January 2018]

What the h*** goes on in Denmark? And who the h*** is this Per Fink? He acts more like a Nazi Scientist than a Doctor. I am so outraged on behalf of Karina and her parents. And also sickened this can happen to someone for just being Ill. FIVE police officers come and drag her away, for 3 years!? We need to bring attention not only to this very real disease, but also to the plight of Karina Hansen and others like her. I hope this helps people understand what it is to suffer from this disease and it's not in people's heads or that they're lazy.

This is the beginning

[eddykeuninckx · 10/10 · 22 December 2017]

I've seen the film several times and it's still touching me. When I organised a screening, more then 100 people showed up. We had to refuse people as the theater couldn't hold more. This film reveals the hidden world of an illness that's misunderstood, unknown for the public, worldwide. The impact is huge and it's just the beginning of a movement that can't be stopped anymore.

This is a must see!

Hysteria Has Always Been The Go-to Diagnosis For Seemingly Unexplained Health Symptoms, Especially For Women

[mixmeone · 10/10 · 22 December 2017]

What I appreciated most about 'Unrest' is that you see Jen, who turns the camera on herself to document her illness, has the same symptoms that were filmed many decades ago of women collapsing, fainting, and becoming catatonic which were attributed to hysteria. Throughout medical history, women who experienced unexplained health symptoms have often been labeled with mental health disorders and it continues to this day. I have had ME/CFS (formally diagnosed and disabled under Social Security with Chronic Fatigue Syndrome) before the Incline Village outbreak. I have seen many documentaries, film shorts, and read many media and blog posts about my disease but none have the accuracy coupled with a moving personal struggle story as 'Unrest'.

When AIDS was first being reported on by the media, I remember one patient being interviewed talking about his disease. Just by looking at him you could see he was dying and was ravaged by the disease. Just behind him on the wall was a photo of him as his former handsome self. But because ME/CFS patients are never seen at their worst, not by their doctors, most family or friends, it is difficult to grasp just what is happening to them. The striking video and photos of Jen as her former self and those you will see as she is now will help viewers to understand the toll this disease has taken on her and many living with ME/CFS around the world.

The disease name is Myalgic Encephalomyelitis but known to most as Chronic Fatigue Syndrome, hence the ME/CFS acronym. Patients suffer from a myriad of chronic health symptoms that fluctuate in severity for the patient and differ in symptoms and severity from patient to patient. 25% are considered to be severely ill who can be bed or wheelchair bound or home or all but home-bound while others may only be able to work part-time struggling to do much more than that. Others may be able to work full time but at great sacrifice to their families and unable to do much socially.

The hallmark symptom, Post-exertion Malaise (PEM) (the worsening of symptoms) is the result of a person with ME/CFS exerting them self physically or cognitively and due to Jen's severe form of the disease can result in her collapsing, fainting or going through a neurological meltdown. Each patient has different thresholds of what they can do before they exert them self and increase their symptoms. Some may only have friends over to overexert them self, others working a few more hours at work, and still, others can do so with just a shower. While many do not experience the severe crash Jen does, most experience some sort of crash and increase their fatigue and weakness.

Unrest Doesn't Match The Hype

[basilolio · 1/10 · 11 January 2018]

Jen has recently stated: "This film and its campaign has never been about raising awareness ... it's always been about organizing." ***** OK, so apparently Jen's film Unrest has never been about raising awareness.

Much ado and hype about the love story Unrest. It doesn't get my vote. No pajama party film screening happening here. Such an expectation for very sick people to be holding screening events, as well as being asked and encouraged to hold at-home screening parties. Because of M.E., and the limitations and restrictions this disease imposes on us, we struggle with the bare minimum of the basics of daily living. The Living Dead.

Unrest is a business of a film maker to market and sell a product with hype to get to the Oscars. In 2013 patients were canvassed on-line with crowdfunding to finance the film, and there are multiple e-mails to date with a donate button expressing the need, yet again, for further donations to finance such things as marketing and promoting Unrest. However, many persons with Myalgic Encephalomyelitis, M.E., are also stricken with poverty.

I feel that there are portrayals in the film and 'wailing' reactions, etc. to the film that can be used against patients.

There were also re-enactment scenes; the portrayals seemed phoney. There are also instances where the scene doesn't match with my experience of M.E. For example, it was a bright sunny day at the reunion where everyone was dressed in bright orange. Persons with M.E. experience light sensitivity, yet the sunglasses were perched on Jen's head instead of covering her eyes.

M.E. strikes men, women, children and teens. And M.E. continues to spread. This is an alarming problem with no medical treatments; our lives are destroyed, and this appalling situation has been going on for more than 30 years. The general population of persons with M.E. do not have access to medical treatments to get us back to health, in order live a productive and active life in society.

Jen revealed in the film that she is receiving medical treatments (e.g. Valcyte) and has access to M.E. specialists. Presumably, the medical treatment is responsible for her ability of in-person world travel and interviews promoting her film. For the vast majority of M.E. patients such world travel and activity is impossible and the attempt to do so would result in severe and dangerous long-term crashing for us.

To gain a realistic, accurate and most important account of the history of the politics hindering, blocking and obfuscating progress to funding and research for bio-medical treatments for M.E. these books and resources are recommended.

Osler's Web by journalist Hillary Johnson; Plague by Kent Heckenlively, JD and Judy Mikovits, PhD; Truth to Power New York Native 1980-1997 by Charles Ortleb; and America's Biggest Cover-Up: 50 More Things Everyone Should Know About the Chronic Fatigue Syndrome Epidemic And Its Link to AIDS by Neenyah Ostrom.

Dr. Byron Hyde, M.E. specialist, has a series of You-Tube videos that give an accurate account of the history of M.E., and reasons why there has been no progress made in over 30 years to help M.E. patients. Check out You Tube episodes 83 @ 3:00 minutes regarding the insurance industry. Also, his You Tube episodes 84 and 88.

There are excellent videos with candid accounts of M.E. patients such as (1993) Living Hell and Voices From the Shadows.

The documentary What About ME? is slated for release later in January 2018.

Disappearing in a wrong story

[erlijntje · 10/10 · 14 December 2017]

What does it feel like, when the whole world as you know it, slowly disappears, because of a devastating illness? What if you change from a promising PHD-Student into someone who cannot brush their own teeth anymore?

And what if not only the world disappears, as you can't take part on life anymore, but you as a person disappear as well, as you are not seen and not heard anymore.

It is devastating.

And most of all it is devastating, because people with ME are disappearing in a story that is not true. So many myths, wrong stories and non-scientific believes have been communicated by medical Dr.´s and media in the last decades, that they started to believe them theirselves. And where science has proved ME to be a physical disease over and over and over again, still the story is told that ME is a psychological phenomenon, in which people are sick because they think they are sick.

In this way millions of people are belittled, harassed, neglected and humiliated. Millions of very ill people are treated this way, as most don't have the ability to stand up for themselves. ME its the last taboo of modern history. And this taboo must be broken.

And this is what Jennifer Brea in ´Unrest´ does. She stands up for all those Millions Missing. She stands up against one of the cruelest stories of our time. And she does this in an overwhelming, emphatic and loving way.

This is a story that must be told. But even more: this is a story that must change.

Dying of severe disease is not the worst thing that can happen, disappearing in a wrong story is the thing that is really killing you.

Watch this film, understand what this film is about and than go out of your house and look around.

Once in a Blue Moon

[beyerl-86066 · 10/10 · 1 January 2018]

Millions upon millions belong to this secret club of invisibility. Trapped in bodies at war with itself; fearing and discovering which task will be shuttered forever when the dawn breaks. Few know they can not sustain a life. To work, go to school, attend family functions or walk the block is impossible.

Appointments with countless doctors and clinics seeking the elusive elixir that will return them to life as they knew it. The painful realization that help is not on the way and medicine has turned its back, nothing to offer. Days, weeks, years and decades fade into one another. Birthdays come and go, friendships slip away, and families move on marking time with each birth, each wedding, and each death. This is the front row seat given to those with ME.

Jennifer Brea has done the impossible. She has given us a view from that front row seat. The curtain is drawn back, allowing us to witness the road she and her husband Omar are forced to travel. Unrelenting in her search for answers, she discovers countless others online, lost to the inconceivable horror of myalgic encephalomyelitis.

Unrest is so much more than a Oscar contender. It is a global call to action. The internet has become the portal for this unstoppable army forming one click at a time. Once in a blue moon? Once is all it takes.