When Harvard PhD student Jennifer Brea is struck down at 28 by a fever that leaves her bedridden, doctors tell her it's "all in her head." Determined to live, she turns her camera on herself and her community, a hidden world of millions confined to their homes and bedrooms by ME, commonly called chronic fatigue syndrome.
One Of The Severely Ill Films Herself At Her Worst To Document The Disease Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Jen Brea is one of the severely ill due to ME/CFS. She films herself, directs, interviews doctors and patients via Skype, and edits mostly from her bed in order to document the severity of her disease (and millions worldwide) and how she and her husband, her caretaker, now have to forge a different life than the one they had imagined for themselves.
Patients experience neurological issues with sound and light sensitivity and coordination, pain, POTS, cognition issues, and debilitating fatigue. Exertion whether physical or mental will bring on crashes where symptoms worsen. Doctors and researchers discuss the disease.
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