8.7/10
19
2 user

Issues with My Tissues (2015)

Lara Bloom has Ehlers-Danlos syndrome, a genetic disorder in which the structure of connective tissue is abnormal due to a gene mutation. This results in abnormally fragile and ... See full summary »

Director:

Irene Antoniades

Writer:

Lara Bloom
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Storyline

Lara Bloom has Ehlers-Danlos syndrome, a genetic disorder in which the structure of connective tissue is abnormal due to a gene mutation. This results in abnormally fragile and hyper-extensible tissues throughout the body which can lead to a range of multi-systemic symptoms; the effect on the body is widespread and not limited to one body system. Although widely unknown, EDS affects so many families and individuals around the world. At the age of 31, despite having barely walked more than three miles at a time before in her life due to her condition, Lara decided to try and become the first person with EDS to walk the London Marathon. The documentary follows Lara Bloom's journey as she became the first person with EDS to walk the London Marathon and features interviews with medical professionals, families with EDS and individuals who have suffered from misdiagnosis. Recognition and awareness of EDS is essential.

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Genres:

Documentary

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Official Sites:

Company Name

Country:

UK

Language:

English

Release Date:

12 January 2015 (UK) See more »

Filming Locations:

London, Engand, UK

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Box Office

Budget:

£5,000 (estimated)
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Company Credits

Production Co:

EDS Support See more »
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Technical Specs

Color:

Color

Aspect Ratio:

16:9 HD
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User Reviews

 
A must-watch.
27 May 2015 | by Erin SimonsSee all my reviews

A thoroughly emotional account of what life is like for those living with EDS; an important documentary to raise awareness and educate on a condition which is hugely mis and underdiagnosed.

Lara is inspirational and the documentary is deeply moving. Featuring interviews with those who have lost family to the vascular type of EDS, and those whose lives have been damaged by a lack of knowledge and acceptance of the condition by the medical profession - heartbreaking and honest.

It is shocking to hear what some members of the EDS community have had to endure to finally get to a diagnosis, and how, with the right medical team and acknowledgement of the condition, their lives could have been very different.


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