What if you gave birth to a child with a rare genetic defect? Would you let nature take its course or would you do all you could to give your child a normal life? Recent medical advances are saving the lives of children born with Apert Syndrome, but to live a normal life one must look normal and this is where the journey of Torey's Distraction begins. Chronicled over a period of 10 years, the film follows Torey, Emily and Saige - all children born with Apert Syndrome - a rare genetic condition that causes craniofacial anomalies and skeletal mutation. Blood's directorial debut provides an intimate glimpse into the transforming powers of science, family, humor, hope and compassion.
Not every parent has the child they expect.
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A Look Back
Written by Jimmy LaValle
Performed by Jimmy LaValle See more