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The film chronicles the life of author Thorvald Steen, who suffers from facioscapulohumeral muscular dystrophy; a rare waste disorder that gradually and irreversibly paralyzes his body. The ... Read allThe film chronicles the life of author Thorvald Steen, who suffers from facioscapulohumeral muscular dystrophy; a rare waste disorder that gradually and irreversibly paralyzes his body. The disease, however, has never stopped Thorvald. He is still an active public debater, freedo... Read allThe film chronicles the life of author Thorvald Steen, who suffers from facioscapulohumeral muscular dystrophy; a rare waste disorder that gradually and irreversibly paralyzes his body. The disease, however, has never stopped Thorvald. He is still an active public debater, freedom of speech advocate, author and cultural communicator, although his ski jumping days are ... Read all