'We Are Visible' is a documentary film about people all around the world living with Ehlers-Danlos syndrome. The Ehlers-Danlos syndromes are a group of rare connective tissue disorders that...
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'We Are Visible' is a documentary film about people all around the world living with Ehlers-Danlos syndrome. The Ehlers-Danlos syndromes are a group of rare connective tissue disorders that can affect every part of the body. And EDS is an invisible illness, just like many other chronic conditions. People living with EDS may be severely disabled, but the people around them can't see their disability, which leads to a common misconception: How can you be sick and disabled if you look perfectly fine? 'We Are Visible' shows seven stories including people of all ages (5 - 60 years old), from six different countries with diverse backgrounds, different financial standing who are all differently affected by this invisible condition. They will share their challenges, fights, and fears, but also their achievements, hopes, and triumphs. Today, they are visible.Written by
Karina Ulrike Sturm
It is so rare to have a film about illness or disability made by someone in the community being filmed. I applaud Karina for taking on this monumental task of finding and recording such compelling storytellers so beautifully. Having Karina's story woven throughout shows the audiences the value of having someone with the lived experience of disability in control of the filmmaking. The film covers a broad range of experiences around health, pain, stigma, prejudice, and the workarounds and treatments many people with EDS use. Captions and Audio Description make the film very accessible to a much larger audience. Highly recommend.
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