'We Are Visible' is a documentary film about people all around the world living with Ehlers-Danlos syndrome. The Ehlers-Danlos syndromes are a group of rare connective tissue disorders that...
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'We Are Visible' is a documentary film about people all around the world living with Ehlers-Danlos syndrome. The Ehlers-Danlos syndromes are a group of rare connective tissue disorders that can affect every part of the body. And EDS is an invisible illness, just like many other chronic conditions. People living with EDS may be severely disabled, but the people around them can't see their disability, which leads to a common misconception: How can you be sick and disabled if you look perfectly fine? 'We Are Visible' shows seven stories including people of all ages (5 - 60 years old), from six different countries with diverse backgrounds, different financial standing who are all differently affected by this invisible condition. They will share their challenges, fights, and fears, but also their achievements, hopes, and triumphs. Today, they are visible.Written by
Karina Ulrike Sturm
Outstanding View Into the Lives People with Ehlers-Danlos Syndrome
As a physical therapist who specializes in Ehlers-Danlos Syndrome, contributing author to the book "Disjointed" and founder of the Silicon Valley Ehlers Danlos Support Group I am thrilled to view this documentary on the difficult life of multiple EDS sufferers. This documentary demonstrates the daily struggle to get proper medical care, function on a daily basis, deal with the emotional distress and be recognized with this poorly diagnosed syndrome. Karina looks into the lives of EDS Individuals and captures the physical and emotional struggles they deal with on a daily basis. This is a film that every medical student and doctor should see to truly understand this more common than appreciated syndrome.
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