'We Are Visible' is a documentary film about people all around the world living with Ehlers-Danlos syndrome. The Ehlers-Danlos syndromes are a group of rare connective tissue disorders that...
See full summary »
'We Are Visible' is a documentary film about people all around the world living with Ehlers-Danlos syndrome. The Ehlers-Danlos syndromes are a group of rare connective tissue disorders that can affect every part of the body. And EDS is an invisible illness, just like many other chronic conditions. People living with EDS may be severely disabled, but the people around them can't see their disability, which leads to a common misconception: How can you be sick and disabled if you look perfectly fine? 'We Are Visible' shows seven stories including people of all ages (5 - 60 years old), from six different countries with diverse backgrounds, different financial standing who are all differently affected by this invisible condition. They will share their challenges, fights, and fears, but also their achievements, hopes, and triumphs. Today, they are visible.Written by
Karina Ulrike Sturm
The faces of a rare disease ... deserves to be seen by millions
Being a journalist and writing a lot on chronic diseases, I think this documentary touching and important at once. EDS destroys the lives of young and old, wealthy and poor alike, and it's about time for thorough research, reliable diagnostics, and therapies which really help patients. Plus, whoever lives with EDS deserves support in his or her daily life as well as with school and job issues. Karen Sturm found likeable, courageous protagonists, and all the beautiful scenes and wonderful music help the viewer to bear their stories. I hope for many happy endings in real life ... if this film is shown in many places around the globe it might help.
6 of 6 people found this review helpful.
Was this review helpful to you?
| Report this