'We Are Visible' is a documentary film about people all around the world living with Ehlers-Danlos syndrome. The Ehlers-Danlos syndromes are a group of rare connective tissue disorders that...
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'We Are Visible' is a documentary film about people all around the world living with Ehlers-Danlos syndrome. The Ehlers-Danlos syndromes are a group of rare connective tissue disorders that can affect every part of the body. And EDS is an invisible illness, just like many other chronic conditions. People living with EDS may be severely disabled, but the people around them can't see their disability, which leads to a common misconception: How can you be sick and disabled if you look perfectly fine? 'We Are Visible' shows seven stories including people of all ages (5 - 60 years old), from six different countries with diverse backgrounds, different financial standing who are all differently affected by this invisible condition. They will share their challenges, fights, and fears, but also their achievements, hopes, and triumphs. Today, they are visible.Written by
Karina Ulrike Sturm
A unique and thoughtful film about living with a rare illness
All the stories in the film give different insights into how people and families live with EDS and many stick in your mind long after you finish watching. I didn't know much about EDS (or chronic illnesses in general) before watching this film, but it's a great way to find out more if you are curious. You see the daily struggles and victories from all different perspectives, from coping with different symptoms, navigating health systems that don't understand to working out how to live and look to the future with this rare illness. A unique and interesting film for anyone who wants to know more about EDS specifically or living with illness in general.
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