'We Are Visible' is a documentary film about people all around the world living with Ehlers-Danlos syndrome. The Ehlers-Danlos syndromes are a group of rare connective tissue disorders that...
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'We Are Visible' is a documentary film about people all around the world living with Ehlers-Danlos syndrome. The Ehlers-Danlos syndromes are a group of rare connective tissue disorders that can affect every part of the body. And EDS is an invisible illness, just like many other chronic conditions. People living with EDS may be severely disabled, but the people around them can't see their disability, which leads to a common misconception: How can you be sick and disabled if you look perfectly fine? 'We Are Visible' shows seven stories including people of all ages (5 - 60 years old), from six different countries with diverse backgrounds, different financial standing who are all differently affected by this invisible condition. They will share their challenges, fights, and fears, but also their achievements, hopes, and triumphs. Today, they are visible.Written by
Karina Ulrike Sturm
Just finished the documentary. It's very well balanced. I think you have done an excellent job of expressing our realities, which are so different yet similar in many ways. I found it very fair and matter of fact, which I can resonate strongly with and I think can only further our cause. You've expressed it clearly in terms of abilities and loss and the effects EDS has - most of all in terms of the reality of this condition, and how people with EDS are exactly that; people with EDS. I liked it very much.
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