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The Boy Whose Skin Fell Off (2004)

A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest ... See full summary »

Director:

Patrick Collerton
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With Prime Video

5 wins & 2 nominations. See more awards »

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Cast

Credited cast:
Edna Kennedy Edna Kennedy ... Herself
Jonny Kennedy Jonny Kennedy ... Himself
Nell McAndrew Nell McAndrew ... Herself
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Storyline

A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full. Written by Leonie Davidson Channel 4

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Genres:

Documentary

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Details

Official Sites:

Channel 4 [UK]

Country:

UK

Language:

English

Release Date:

2004 (UK) See more »

Filming Locations:

UK

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Box Office

Budget:

£150,000 (estimated)
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Company Credits

Production Co:

Yipp Films Ltd. See more »
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Technical Specs

Runtime:

Sound Mix:

Stereo

Color:

Color

Aspect Ratio:

1.78 : 1
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Did You Know?

Quotes

Jonny Kennedy: I think I'll be bored if the angels sit about on clouds plucking their harps all day. I'll be up there, getting them off their clouds, doing drops of 1,000 feet and then pulling up. I think you need to spice things up a bit.
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Connections

Referenced in The 50 Greatest Documentaries (2005) See more »

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User Reviews

 
awesome
25 October 2006 | by hillbillywildcat51See all my reviews

i was greatly moved when i watched the movie.how jonny could keep such hope and faith was amazing. so many people only care about what they want , and fuss about all the things they don't have . and they are such small things ,like chothes,money a new car . i've seen people in tears because of a blemish. this movie brings everything back to the basics . love,hope the beauty of the simple but so important things in life.it makes our everyday problems seen for what they are Small and really unimportant. you watch this boy and you realize as long as you have been blessed with food ,a roof over your head and your loved ones around you .you are truly blessed.and the saying stop and smell the roses truly has a new meaning.and i know jonny will see this and i want to thank him so much for sharing such faith,strenght,and humor with me .thank you jonny i know you soar the heavens and bring much love and laughter to the heavens above.


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