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Until about the age of seven, Lorenzo Odone was a normal child. After then, strange things began to happen to him: he would have blackouts, memory lapses, and other strange mental phemonenons. He is eventually diagnosed as suffering from ALD (adrenoleukodystrophy): an extremely rare incurable degenerative brain disorder. Frustrated at the failings of doctors and medicine in this area, the Odones begin to educate themselves in the hope of discovering something which can halt the progress of the disease.Written by
Murray Chapman <email@example.com>
Lorenzo Odone, who doctors had predicted would die in childhood, died on Friday, May 30, 2008, one day after his 30th birthday. See more »
The life of one boy is not enough reward for you to risk the reputation of the institution and the esteem of your peers.
That was uncalled for. Your responsibility is merely towards your own child. My responsibility is towards all the boys that suffer from this disease, now and in the future. Of course I anguish for the suffering of your boy. And of course I applaud you for the efforts you make on his behalf. But I will have nothing to do with this oil.
We are not asking, Doctor, for your ...
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Lorenzo's scream is heard right at the very end of the film. See more »
Turning misfortune into miracles; turning tragedy into triumph
This is the true story of Lorenzo Michael Murphy Odone, who, at the age of seven, suffered from a rare, incurable brain disease called ALD. The doctors said there was nothing they could do and that he would die within 24 months of diagnosis. Lorenzo's parents, Augusto Odone (Nick Nolte) and Michaela Odone (Susan Sarandon) decided to gather all the information they could find on their own. Day by day, night by night, from laymen to dedicated researchers, they discovered an awful lot more about the disorder than doctors and scientists. As Lorenzo's condition deteriorated, they never ceased to soldier on. Eventually, Augusto Odone solved the mystery and invented a prescription- a special form of olive oil which could help boys (the disease is passed on by the mothers to their sons, not their daughters) with ALD. Because of his contribution, Odone received an honorary medical degree. And at the age of fourteen, Lorenzo could make some movements and began trying to communicate with the outside world with a computer...
I wept several times when watching this film. Notwithstanding all the odds, the Odones struggled and conquered their misfortune, and their achievement was outstanding. This is an intense drama with fine acting and something to think about deeply.
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