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A Day in the Life of Felix (2008)

Nemaline Myopathy is a rare form of muscular dystrophy. This film documents how one boy deals with it on a day to day basis.

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Storyline

Born in April 1999 with a rare form of muscular dystrophy condition called Nemaline Myopathy. Felix has the severest form and is on a ventilator, tube fed, uses a power wheelchair and has a whole set of issues arising from his profound muscle weakness. This film highlights Felix and his families day to day difficulties living and dealing with his circumstance. Written by Anthony Straeger

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Documentary

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Release Date:

19 May 2008 (UK)  »

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Budget:

£23,000 (estimated)
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(HDCAM)

Aspect Ratio:

1.85 : 1
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Soundtracks

Souvenir
& "Passacaille"
Written and Performed by Claude Lachapelle
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Amazing Documentary
20 May 2009 | by (UK) – See all my reviews

An incredible portrait of courage in the face of day-to-day adversity, where the smallest of daily activities that most would perform without a second thought become huge battles to be won - battles that must be fought over and over again.

With their straight-shooting style, the filmmakers have really captured the essence of life for Felix and have produced a thought-provoking, nuanced, compassionate portrait of his daily struggles and successes. Particularly noteworthy is the way in which the director manages to achieve the right balance between fly-on-the-wall factual coverage and sympathy for the subject, without ever making the audience feel manipulated in any way. Quite an achievement!


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