The Boy Whose Skin Fell Off (2004) (TV)

User Rating:

8.7/10   

Director:

Patrick Collerton

Release Date:

2004 (UK)

Genre:

Documentary

Plot:

A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB)...

Awards:

5 wins & 2 nominations

Cast

Edna Kennedy	...	Herself
Jonny Kennedy	...	Himself
Nell McAndrew	...	Herself

Runtime:

50 min

Country:

UK

Language:

English

Color:

Color

Aspect Ratio:

1.78 : 1

Sound Mix:

Stereo

Filming Locations:

UK

Company:

Yipp Films Ltd.

Quotes:

Jonny Kennedy: I think I'll be bored if the angels sit about on clouds plucking their harps all day. I'll be up there, getting them off their clouds, doing drops of 1,000 feet and then pulling up. I think you need to spice things up a bit.

Movie Connections:

Featured in The 50 Greatest Documentaries (2005) (TV)

Brilliant!

In September 2003 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonising sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full. Produced and directed by Patrick Collerton and first shown in March 2004 The Boy Whose Skin Fell Off has become the most talked about documentary of that year. It attracted nearly five million viewers and after the screening the public donated over half a million pounds to Jonny's charity, DEBRA. A Jonny Kennedy Memorial Fund has been set up to raise another half a million with the aim of ensuring that Jonny Kennedy left a one million pound legacy.