This is a "must see" for patients and even more so for their families
I some times wish I had Joni's health, because life is all about expectations and she exceeds the expectations of all of those around her and fortunately her own (after an adjustment period).
What is critical is that (according to this story) she has full support from friends and family. I promise you this is often not the case. Often what happens is the lay person has their own expectations based on naiveté. In my case, my drive to restore function to my permanent injuries only makes my family wonder why I can't get double the results. You see my point? Their expectations are always going to be more than what I achieve. My drive and hard work to them only proved that it was not so bad in the first place. I am not not all people are like that but I fear that most are. I try to speak out for others that are treated unfairly and it is too humiliating to defend my own strengths. I have been considering a book for my story but my humble sense of self makes me prefer to point to Joni's story as a triumph. My story would sound like an attack on my family but they are probably just typical. Joni is sensational and I can see that without her family there for her in the first years the story would have been 10,000 times more tragic.
Please consider watching and or reading this if anyone in your family suffers any permanent disability.
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